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Is it time to reimagine your haemophilia story?

Living with haemophilia may often result in bleeds and joint pain, which can have an impact on everyday life. Reducing joint pain and the chance of bleeds may help you feel better and live your life with fewer limitations.

Understanding how to improve your protection from bleeds and engage in more meaningful conversations with your doctor may help you identify personal goals and reimagine your future with haemophilia.

Is it time to reimagine your haemophilia story?

Living with haemophilia may often result in bleeds and joint pain, which can have an impact on everyday life. Reducing joint pain and the chance of bleeds may help you feel better and live your life with fewer limitations.

Understanding how to improve your protection from bleeds and engage in more meaningful conversations with your doctor may help you identify personal goals and reimagine your future with haemophilia.

Learn how factor levels impact protection from bleeds

This video explores the concept of normalised haemostasis and how maintaining it could mean that people with haemophilia are able to live a life with less impact on their well-being.

Understanding levels of protection

A person’s level of protection from bleeds depends on factor levels, which represent the amount of clotting factor in the blood. Factor levels also indicate the severity of haemophilia and impact the symptoms you may experience.

understanding

Normalised haemostasis is when levels of factor in the blood needed for blood clotting are the same or nearly the same as a person without haemophilia. Achieving normalised haemostasis happens when factor levels are above 40%. This level of factor may provide increased protection against joint bleeds, impacting joint health, pain 
and overall well-being.



Speak to your doctor to better understand your factor levels and the impact they may have on your daily activities.

Source:

 

Blanchette, VS et al. J Thromb Haemost. 2014;12(11):1935-1939.
National Bleeding Disorders Foundation. Available at: https://www.bleeding.org/bleeding-disorders-a-z-types/hemophilia-a.
Accessed: 10-06-2024. Srivastava A et al. Haemophilia 2020; 26(Suppl 6):1-158.