Podcast: Living well with haemophilia

Podcast: Living well with haemophilia

Paul and Axelle are the parents of a little boy with haemophilia A. Rich was diagnosed with severe haemophilia A as a child, with no family history.

In this podcast episode, Paul, Rich and Axelle talk about achieving a balance between managing the risks of haemophilia and leading a fulfilling life – either as a person with haemophilia, or as a parent.

How can your child live life to the fullest while living with haemophilia?

Paul and Axelle explain how they encourage their son to take part in activities such as football, climbing, yoga and dance. They also discuss how they help him build physical and psychological confidence in his ability to live with haemophilia.

They also share advice for other families with young children with haemophilia.

 

 

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