Connecting with others
Sometimes it can be difficult to talk with others about haemophilia. Here's how to talk about haemophilia with other people in your life, including partners, friends and colleagues.
Talking with others about haemophilia
Whether it’s a new partner, friend or a colleague, it’s your choice when and how you talk with others about your haemophilia. Here you’ll find some tips on how to have a conversation that works for you.
Building confidence builds memories
Show this short animation to your parent/guardian to help them see that you can confidently manage your haemophilia and go on adventures too!
A parents’ perspective of bringing up a child with haemophilia
A parents’ story of bringing up a child with haemophilia The parents of a young boy with haemophilia talk about how they have learned to accept the diagnosis and live their lives beyond haemophilia.
Video: I had no family history of haemophilia
When Rich Gorman was diagnosed with haemophilia as a child he had no family history of the disease. Now, aged 31, he discusses his diagnosis, what it was like when first learning about the disease, and being supported by the haemophilia community.
Podcast: Growing up with haemophilia
Paul and Rich discuss the experience of growing up with haemophilia, the importance of role models and the support of the online community.
Deciphering haemophilia
View our list of common terms, words and phrases used in haemophilia.
Quiz: Haemophilia facts and myths
Take our mythbuster quiz to separate the facts from the myths around haemophilia.
