Hans

Hans' challenge is to reach the top of the Ravenbosch forest

- join him!

    

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Meet Hans
Age: 54
Country:  The Netherlands
Haemophilia A
Challenge: Reach the top of the Ravenbosch forest

 

 

Meet Lienke
Age: 28
Country:  The Netherlands
Role in journey: Motivational coach and entrepreneur

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Hi, my name is Hans. I am a severe haemophilia patient with a complex comorbidity, but with guts and a positive attitude, I manage to maintain my health at a reasonable level. I don't think about the things that I can't do anymore, but I optimistically accept everything I can do and enjoy with my wife Sosia every day.

I constantly challenge myself to stay active. At the age of 54, I can call myself an experience expert from a patient perspective. A few years ago I wrote my autobiography, which is very popular with patients and caregivers. As an extension of that, I give training and lectures on hemophilia and co-infections.

1: It is starting

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The challenge has begun. The moment I got out of the car I got this sense of familiarity. After all, it's the forest I spent a lot of time in ever since I was a kid. My granddad took me to this forest from the day I could walk on my own. First to a spot where, in autumn, you could find delicious chestnuts. He showed me how to take them out of the spiky husk and peel them, and then we would eat them together.

My granddad had his own opinion about hemophilia. He used to say: “Oh, just leave him be!” And now, after being away for 9 years due to long-term illness and rehabilitation, I once again set foot in the Ravensbosch. For now, I will focus on the flat part. This is also the longest distance I have to walk. The ground under my feet takes a little getting used to, because a forest path is very different from beautifully paved roads. I feel good, motivated and fit. Partly because of the tips from my coach, Lienke.

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Every morning I stand in front of the mirror looking at myself intently and telling myself out loud that I am going to succeed. The sun is shining and although I find myself in the lowest part of the forest, there are many beautiful vistas to take in. My coagulation level is good, so that won’t be the problem. I’m glad I put on my hiking shoes, also because it means they are finally back in use after a long time. As I walk and stand, I feel a lot more stable than I had expected but I do feel a little resistance in my left ankle. Don’t do too much too soon. I have to get used to the environment and the past keeps flashing before my eyes.

How I used to walk, run and explore around here. It affects me more than I had expected. My not-yet replaced joints also have to find their position again. Nine years is a very long time. With every step I take, I have to be aware of where I put my foot down. At the first crossing, about 500 meters from where I started, I decide to turn back.

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After all, I have to walk the same distance back as well. I have made a start however and according to my diary, my wife Sosia and I are having dinner with a befriended couple at our favorite restaurant tomorrow. Of course, I don’t want to miss that, so I have to gradually build up the walking.

Dislcaimer: Before starting your own physical challenge, it is important to discuss it with your treatment team first.

Responsive banner

It is possible to live a life beyond haemophilia. 

 Click here to read more about how it is to live with haemophilia at different stages in life.

Hans' challenge is to reach the top of the Ravenbosch forest

- join him!

    

image

 

 

Meet Hans
Age: 54
Country:  The Netherlands
Haemophilia A
Challenge: Reach the top of the Ravenbosch forest

 

 

Meet Lienke
Age: 28
Country:  The Netherlands
Role in journey: Motivational coach and entrepreneur

image

Hi, my name is Hans. I am a severe haemophilia patient with a complex comorbidity, but with guts and a positive attitude, I manage to maintain my health at a reasonable level. I don't think about the things that I can't do anymore, but I optimistically accept everything I can do and enjoy with my wife Sosia every day.

I constantly challenge myself to stay active. At the age of 54, I can call myself an experience expert from a patient perspective. A few years ago I wrote my autobiography, which is very popular with patients and caregivers. As an extension of that, I give training and lectures on hemophilia and co-infections.

1: It is starting

image

The challenge has begun. The moment I got out of the car I got this sense of familiarity. After all, it's the forest I spent a lot of time in ever since I was a kid. My granddad took me to this forest from the day I could walk on my own. First to a spot where, in autumn, you could find delicious chestnuts. He showed me how to take them out of the spiky husk and peel them, and then we would eat them together.

My granddad had his own opinion about hemophilia. He used to say: “Oh, just leave him be!” And now, after being away for 9 years due to long-term illness and rehabilitation, I once again set foot in the Ravensbosch. For now, I will focus on the flat part. This is also the longest distance I have to walk. The ground under my feet takes a little getting used to, because a forest path is very different from beautifully paved roads. I feel good, motivated and fit. Partly because of the tips from my coach, Lienke.

image
image

Every morning I stand in front of the mirror looking at myself intently and telling myself out loud that I am going to succeed. The sun is shining and although I find myself in the lowest part of the forest, there are many beautiful vistas to take in. My coagulation level is good, so that won’t be the problem. I’m glad I put on my hiking shoes, also because it means they are finally back in use after a long time. As I walk and stand, I feel a lot more stable than I had expected but I do feel a little resistance in my left ankle. Don’t do too much too soon. I have to get used to the environment and the past keeps flashing before my eyes.

How I used to walk, run and explore around here. It affects me more than I had expected. My not-yet replaced joints also have to find their position again. Nine years is a very long time. With every step I take, I have to be aware of where I put my foot down. At the first crossing, about 500 meters from where I started, I decide to turn back.

image
image

After all, I have to walk the same distance back as well. I have made a start however and according to my diary, my wife Sosia and I are having dinner with a befriended couple at our favorite restaurant tomorrow. Of course, I don’t want to miss that, so I have to gradually build up the walking.

Dislcaimer: Before starting your own physical challenge, it is important to discuss it with your treatment team first.

Responsive banner

It is possible to live a life beyond haemophilia. 

 Click here to read more about how it is to live with haemophilia at different stages in life.