Here are some discussion tips that may be helpful when speaking with your doctor about haemophilia.
Challenge the norm
If you feel that any part of your care is not working for you, don't be afraid to speak up. This is about getting the care that will help you do the things most important to you.
Be open and accurate
Answer questions from your doctor as best as you can as it will help to build your relationship. It also means they will be in a better position to support you.
The appointment is an opportunity to ask any questions you have about your health, test results or haemophilia care options. There are no ‘silly' questions.
You can ask someone you trust to come along to appointments with you. Not only will this help you feel supported, they may also have useful questions to add to the discussion
Turn preparation into action
Remember to keep your notes and questions to hand and share the ones most important to you with your doctor