My care
Knowing how to get the most out of interactions with your healthcare team can help you achieve what you want from your care. Here's our guide.
Making the most of every haemophilia appointment
Get tips on how to make the most of
your appointments with your haemophilia
healthcare team.
Discussion tips for haemophilia
Read through some discussion tips
that may be useful when talking to
your doctor about haemophilia.
Deciding what you want from haemophilia treatment
Advice on how to decide, and share
with your healthcare team, what matters
most to you about your haemophilia treatment.
Turning your haemophilia thoughts into questions for your doctor
Here are some suggestions on how
to talk with your doctor about
what’s on your mind about haemophilia.
Haemophilia
appointment checklist
View our checklist to help
you prepare for your next
haemophilia appointment.
Your haemophilia care team
Understand the roles of the
experts who care for people
with haemophilia.
Exploring the boundaries
of independence with
haemophilia – Meri
In this video Meri, the mother of
Anders a 14-year-old with severe
haemophilia A, talks about Anders'
growing independence around his condition.
Take control
of your haemophilia
James Gorman, a 30-year old with severe
haemophilia A, blogs on how people who
live with haemophilia bring unique knowledge
that should shape the care they receive.
Podcast: Learning how to optimise haemophilia care after diagnosis
Axelle, Paul and Rich discuss learning to manage haemophilia after diagnosis, their self-management experience and how they took control of the condition.
