Kayaks on lake

Welcome to Liberate Life

Living Life Beyond Haemophilia
is our vision, based on our determination to transform
lives for people with rare diseases.

Explore haemophillia support resources and information that may help you to identify personal goals, limit the impact of the condition, and get the most out 
of care and treatment.

Real-life stories

People living with haemophilia have always interesting stories to share about their unique experiences with the condition.

This page is dedicated to all those that have shared their stories with us with the aim to inspire others in their haemophilia journey.
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man riding a bicycle

Renato from Slovenia

"And from the time that I am monitoring my factor levels, I live quite a liberated life."
mother and her child are drawing on the ground

Axelle from France

"There is always something positive to be taught to our children to help them and us live happily with and beyond haemophilia."
Close-up of Anders

Anders from Finland

"After I graduate, I’d like to study dance or musical theatre in New York or London."
woman standing up rehearsing in empty room with man seated watching

Paola from Italy

"I have become stronger, braver, and I have never stopped fighting to reach my goals."
couple enjoying the sunshine wtih sunglasses on

Alex from Greece

"Knowing my factor levels increases my confidence, you know when you need to be more careful or less careful and do the things that you want."
man sitting in chair talking to camera

Meet physiotherapist David

"My philosophy is that we need to teach people to move better, then they can move more. We need to encourage them to be more active."

Your haemophilia journey

This site aims to provide you with support and information that may help to identify personal goals, limit the impact of the condition, and get the most out of care and treatment.
Happy man and child riding bike

Haemophilia & you
In this section you will find general information about haemophilia, as well as useful resources for caregivers, children, teenagers, adults and seniors living with haemophilia.
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Happy doctor and patient

Managing your care
Learn more about the current haemophilia treatments and explore how you can best talk with your healthcare team about what you want to achieve with your care.
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Happy family running in sunshine

Everyday life with haemophilia
Living with haemophilia may affect your joint health and can lead to pain impacting your wellbeing and activity levels.
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People holding hands raised against roof

Finding community support & tools library
Find all the contact details for your closest haemophilia organisation and tools created for you.
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Person sitting in car roof tent in the sunset

Exploring your life ahead
What do you need to know to achieve a better quality of life? How can you become more confident and independent while living with haemophilia?
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Selected content for you

man riding a bicycle

Renato from Slovenia

"And from the time that I am monitoring my factor levels, I live quite a liberated life."
Liberation map graphic
Finding community support & tools library

Discover your liberation goals

What does liberation mean for you? What are the things you want to do or keep doing? Complete the Liberation Map quiz to reflect on aspects of your wellbeing that you aspire to improve so you can discuss them with your doctor and get the support you need to pursue your goals.
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Breaking cycle of pain
Finding community support & tools library

Breaking out of the haemophilia pain cycle

To prevent or stop progression to joint damage, it is important to intervene early to stop joint bleeds and break out of the cycle of pain.
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