Haemophilia facts and myths quiz
Haemophilia is a rare condition – this means not many people are familiar with what exactly haemophilia is, available treatments and how it affects people’s lives.
Take our mythbuster quiz to separate the facts from the myths around haemophilia. Tap True or False for each of the cards to see how much you know.
There’s only one type
of haemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
There’s only one type
of haemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
There’s only one type
of haemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
It is False!
There are 2 main types, haemophilia A and B.1 Each is managed differently as the missing blood proteins are different for each type.1 For more information please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#what_is_hemophilia
People with haemophilia will bleed to death if they have a cut or graze
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
People with haemophilia will bleed to death if they have a cut or graze
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
People with haemophilia will bleed to death if they have a cut or graze
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
It is False!
When people with haemophilia get grazes and cuts, they can be treated just like everyone else. Such bleeds are unlikely to cause major issues or complications. They are not typical bleeding symptoms for someone
with haemophilia.1
You can’t
‘catch’ haemophilia
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
You can’t
‘catch’ haemophilia
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
You can’t
‘catch’ haemophilia
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
It is True!
Haemophilia is not contagious like a cold or flu virus. It is a genetic condition that cannot be passed on through close contact with others.13
People with haemophilia will definitely pass it on to their children
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
People with haemophilia will definitely pass it on to their children
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
People with haemophilia will definitely pass it on to their children
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
It is False!
The genes causing haemophilia are carried on the X chromosome. Men with Haemophilia can pass on the gene to their daughter who then become carriers. Carriers have 50% chance of passing their genes to their offspring- girls with the gene will become carriers, and boys will have haemophilia.1
For more information
please visit:
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#how_do_you_get_hemophilia
Not all bleeding in haemophilia is visible (‘external bleeding’)
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
Not all bleeding in haemophilia is visible (‘external bleeding’)
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
Not all bleeding in haemophilia is visible (‘external bleeding’)
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
It is True!
In fact, much of the bleeding in haemophilia is in joints and muscles, which may or may not be visible.1 Swelling, for example, is a visible sign of a joint bleed.6 Joint bleeds result in a limited range of motion and tingling sensations and the area may also be painful and warm to the touch.6
Everyone with haemophilia will eventually get
joint disease
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
Everyone with haemophilia will eventually get
joint disease
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
Everyone with haemophilia will eventually get
joint disease
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
It is False!
People with haemophilia may indeed experience changes in mobility, pain and, in some cases, joint problems, as a result of bleeds.14 However, there are many ways to keep joints healthy and protect them, including prophylactic therapy and physiotherapy.14
Haemophilia only affects men
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
Haemophilia only affects men
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
Haemophilia only affects men
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
It is False!
Women can have classic severe haemophilia if their father has haemophilia and their mother is a carrier
of haemophilia.1
Haemophilia is linked to having HIV and hepatitis C
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
Haemophilia is linked to having HIV and hepatitis C
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
Haemophilia is linked to having HIV and hepatitis C
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
It is False!
Many years ago, several people with haemophilia were unintentionally given contaminated blood products during blood transfusions that infected them with certain diseases.4,7 Nowadays treatments have improved and strict blood safety measures have been introduced. Modern therapies, like recombinant factors, are manufactured and do not come from donated blood.7
People with haemophilia* should avoid active professions
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
People with haemophilia* should avoid active professions
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
People with haemophilia* should avoid active professions
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
Just like anyone else, people with haemophilia should pursue their career dreams.15 Since everyone is unique, a person with haemophilia should explore professions that match both their career aspirations and
activity levels.10
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
Haemophilia is a Royal condition, so people who have it must have Royal blood!
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
Haemophilia is a Royal condition, so people who have it must have Royal blood!
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
Haemophilia is a Royal condition, so people who have it must have Royal blood!
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
It is False!
It’s certainly true that some members of the Royal family historically had haemophilia.3,4 However, this does not mean that every person with haemophilia is a
Royal descendant.
Haemophilia affects everyone in the
same way
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
Haemophilia affects everyone in the
same way
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
Haemophilia affects everyone in the
same way
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
It is False!
People with haemophilia can have mild, moderate or severe levels of disease, depending on the clotting factor activity level in their blood. Usually, people with mild haemophilia bleed rarely or after specific events such as surgery. In moderate and severe haemophilia, bleeding occurs more frequently. In severe haemophilia, these can be multiple times a week.1
To find out more,
please visit:**
https://elearning.wfh.org/elearning-centres/introduction-to-hemophilia/#severity_of_hemophilia
Travelling abroad for long trips is possible
for people
with haemophilia
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
Travelling abroad for long trips is possible
for people
with haemophilia
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
Travelling abroad for long trips is possible
for people
with haemophilia
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is True!
Travelling can be a huge part of someone’s life and this is no different for people with haemophilia. With some careful preparation and adjustments, people with haemophilia can enjoy global travel, even to
remote locations.17
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
In Haemophilia B, trough levels are the best indicator for protection
from bleeding
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
In Haemophilia B, trough levels are the best indicator for protection
from bleeding
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
In Haemophilia B, trough levels are the best indicator for protection
from bleeding
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
It is False!
Clotting factor trough levels alone may not be a fully reliable way to predict how well-protected someone with haemophilia B is from bleeds.8 Other signs are also taken into account, due to the fact that Factor IX can also be found outside of the blood stream.9
Children with haemophilia* should avoid sports and playing with others in case of accidents
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
Children with haemophilia* should avoid sports and playing with others in case of accidents
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
Children with haemophilia* should avoid sports and playing with others in case of accidents
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
It is False!
As parents, we naturally want to protect our child from harm, but striking a balance between being protective and overprotective is crucial.10,11 All children with haemophilia should be encouraged to participate in social activities and sports, for their general development, personal relationships and
self-esteem.10,11
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this.
People with haemophilia should avoid exercise because it causes bleeds
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
People with haemophilia should avoid exercise because it causes bleeds
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
People with haemophilia should avoid exercise because it causes bleeds
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
It is False!
Regular exercise can actually help prevent bleeds and joint damage by strengthening bones and muscles around the joints.18,19
Do reach out to haemophilia centres and patient organisations who can provide you with further advice and resources on this topic.
People with haemophilia* should try to avoid participating in all vigorous activities, regardless of their individual risk
of bleeding
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
People with haemophilia* should try to avoid participating in all vigorous activities, regardless of their individual risk
of bleeding
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
People with haemophilia* should try to avoid participating in all vigorous activities, regardless of their individual risk
of bleeding
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
It is False!
Though it’s true that certain activities are more likely to cause bleeds,5 every person with haemophilia is different.
Children with haemophilia have limited possibilities for their future
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
Children with haemophilia have limited possibilities for their future
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
Children with haemophilia have limited possibilities for their future
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
It is False!
If haemophilia is well-managed with the latest treatments, children may have the opportunity to enjoy an active life less restricted by
the disease.12
Haemophilia is mostly an inherited condition but can sometimes arise as a result of a spontaneous mutation
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
Haemophilia is mostly an inherited condition but can sometimes arise as a result of a spontaneous mutation
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
Haemophilia is mostly an inherited condition but can sometimes arise as a result of a spontaneous mutation
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
It is True!
Although haemophilia is most often passed on from mothers to sons, a person (male or female) can develop haemophilia through a random change in
their genes.1
*who are not currently experiencing bleeds
**This tool contains external links that may bring you to a third party website, owned and operated by an independent party over which Sobi has no control or responsibility.
NP-10438 | Date of preparation: June 2020
- World Federation of Hemophilia. Guidelines for the management of haemophilia – 2nd edition 2012. Available at: https://www1.wfh.org/publications/files/pdf-1472.pdf (accessed February 2020).
- World Federation of Hemophilia. Genetic counselling for haemophilia – revised edition 2015. Available at: www1.wfh.org/publications/files/pdf-1160.pdf (accessed February 2020).
- Lannoy N and Hermans C. The ‘royal disease’ – haemophilia A or B? A haematological mystery is finally solved. Haemophilia. 2010;16(6):843–847.
- National Hemophilia Foundation. History of bleeding disorders. Available at: www.hemophilia.org/bleeding-disorders/history-of-bleeding-disorders (accessed February 2020).
- National Hemophilia Foundation. Table of activity ratings. Available at: www1.wfh.org/ publications/files/pdf-1198.pdf (accessed February 2020).
- Auerswald G, et al. Pain and pain management in haemophilia. Blood Coagul Fibrinolysis. 2016;27(8):845–854.
- National Hemophilia Foundation. Blood safety – HIV/AIDS. Available at: www.hemophilia. org/Bleeding-Disorders/Blood-Safety/HIVAIDS (accessed February 2020).
- Fernández-Bello I, et al. Evaluation of EC50 of Factor VIII as predictor of prophylaxis efficacy in patients with severe Haemophilia A. Eur J Pharm Sci. 2019;128:215–221.
- Malec LM, et al. Spontaneous bleeding and poor bleeding response with extended half- life Factor IX products: a survey of select US and Canadian Hemophilia treatment centers. Presented at the 61st ASH Meeting, Orlando, Florida. 7–10 December 2019. Abstract 2407.
- World Federation of Hemophilia. Growing up with haemophilia: Four articles on childhood. Available at: www1.wfh.org/publications/files/pdf-1310.pdf (accessed February 2020).
- World Federation of Hemophilia. Psychosocial care for people with haemophilia. Available at: www1.wfh.org/publications/files/pdf-1198.pdf (accessed February 2020)
- Franchini M and Mannucci PM. Past, present and future of hemophilia: a narrative review. Orphanet J Rare Dis. 2012;7:24.
- Haemophilia Foundation Australia. Haemophilia – standards and definitions. Available at: www.haemophilia.org.au/publications/national-haemophilia/2017/no-199- september-2017/isth-2017-congress/standards-and-definitions (accessed February 2020).
- Knobe K, Berntorp E. Haemophilia and joint disease: pathophysiology, evaluation, and management. J Comorb. 2011;1:51–59.
- The Haemophilia Society. Careers with a bleeding disorder and the world of work. Available at: www.haemophilia.org.uk/wp-content/uploads/2017/02/careers_info.pdf.pdf (accessed February 2020).
- National Hemophilia Foundation. Nurses’ guide – travel and vacation planning. Available at: www.hemophilia.org/sites/default/files/document/files/Nurses-Guide-Chapter-15- Travel-Vacation-Planning.pdf (accessed February 2020).
- The Haemophilia Society. Travel. Available at: www.haemophilia.org.uk/support/travel (accessed February 2020).
- World Federation of Hemophilia. Exercise for people with hemophilia. Available at: http:// www1.wfh.org/publications/files/pdf-1302.pdf (accessed February 2020).
- Steps for living. Benefits of sports and fitness. Available at: www.stepsforliving. hemophilia.org/step-up/maintaining-a-healthy-body/benefits-of-sports-and-fitness (accessed February 2020).