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Haemophilia and you
What is haemophilia?
Caregivers, children and haemophilia
Teenagers and haemophilia
Adults and haemophilia
Seniors and haemophilia
Managing your care
Haemophilia treatments and standard of care
Your haemophilia care team
Talking to your doctor
Everyday life with haemophilia
Staying active and protected
Joint & bleed protection
Mental health and wellbeing
Exploring your life ahead
Reimagine your haemophilia story
Life style and independence
Finding community support & tools library
Real-life stories
Teenagers
Jay from Scotland
"My advice, for anyone who was curious and wanted to know more about their sexual health, would be to open that dialogue with their doctor."
Finding community support & tools library
Living with haemophilia in young adulthood
In this episode of our Podcast, Jay and Rich discuss home life and mental health.
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Finding community support & tools library
Growing up with haemophilia
Paul and Axelle are the parents of a little boy with haemophilia A, and Rich was diagnosed with severe haemophilia A as a child.
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Finding community support & tools library
Work, study and personal goals
In this episode about living with haemophilia in young adulthood, Jay and Rich explore the challenges of work, studies and reaching your goals.
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Teenagers
Scott from the UK
"The fact that my haemophilia hasn't had to define me and stop me from expressing myself the way I want to is fantastic."
Teenagers
Matty from the UK
"As a haemophiliac, there are so many things we’re told we can’t do, there are many niches out there that meet your needs."
Teenagers
Anders from Finland
"After I graduate, I’d like to study dance or musical theatre in New York or London."
Finding community support & tools library
Haemophilia toolkit for teenagers
As teenagers with haemophilia grow older and become more independent from the adults who have been managing their haemophilia for them, it is important for them to approach this transition with patience and with the support of those around them.
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Haemophilia and you
Exploring independence with haemophilia
Hear from Anders at age 14, talking about growing up with severe haemophilia A and how it has impacted his hobby of dance.
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