TV team interview

Real-life stories

People living with haemophilia have always interesting stories to share about their unique experiences with the condition.

This page is dedicated to all those that have shared their stories with us with the aim to inspire others in their haemophilia journey.

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Patient stories

Hug between two men

Jay from Scotland

"My advice, for anyone who was curious and wanted to know more about their sexual health, would be to open that dialogue with their doctor."
man with tattoos smiling

Scott from the UK

"The fact that my haemophilia hasn't had to define me and stop me from expressing myself the way I want to is fantastic."
man sitting on sofa talking to camera

Rich from the UK

"Go out there and meet other people with haemophilia and really benefit from their experiences."
man riding a bicycle

Renato from Slovenia

"And from the time that I am monitoring my factor levels, I live quite a liberated life."
woman standing up rehearsing in empty room with man seated watching

Paola from Italy

"I have become stronger, braver, and I have never stopped fighting to reach my goals."
man smiling talking to camera

Matty from the UK

"As a haemophiliac, there are so many things we’re told we can’t do, there are many niches out there that meet your needs."
man and woman running

José from Spain

"Haemophilia has given me confidence and a positive attitude to achieve the unthinkable."
two people walking in nature

Hans from The Netherlands

"Yes there are always things you shouldn’t do, but do the things you want to do and that you can manage."
two people talking outside

Erik from Sweden

"I can participate in normal activities and live the way I’d like to. My expectation above all is to challenge myself."
two people running on path in the woods

Arni from Germany

"I play the piano, I play sports. I simply don’t feel like someone with haemophilia."
Close-up of Anders

Anders from Finland

"After I graduate, I’d like to study dance or musical theatre in New York or London."
couple enjoying the sunshine wtih sunglasses on

Alex from Greece

"Knowing my factor levels increases my confidence, you know when you need to be more careful or less careful and do the things that you want."

Caregiver stories

child playing with Father on golf course

Paul from France

"I love my son more than anything else in the world and having haemophilia is part of this fantastic human being."
family sitting on sofa

Meri from Finland

"I see that he is amazingly fine with his condition – he knows what he wants and is pursuing his goals and dreams."
mother and her child are drawing on the ground

Axelle from France

"There is always something positive to be taught to our children to help them and us live happily with and beyond haemophilia."

Healthcare professionals' advice

woman sitting in office with books talking to camera

Meet haemotologist Pratima

"Every patient has got their own unique needs, and I think it’s important for you to write down what is important for you."
man sitting in chair talking to camera

Meet physiotherapist David

"My philosophy is that we need to teach people to move better, then they can move more. We need to encourage them to be more active."
woman sitting in office talking to camera

Meet psychologist Ana

"They shouldn’t let their lives be ruled by the condition but should learn to live with it and lead a normal life."