Managing your care

Talking to your doctor

Knowing how to get the most out of interactions with your healthcare team can help you achieve what you want from your haemophilia care. Your doctor is likely to have questions for you, but your appointment is also an opportunity to discuss your wants and needs. Voice any concerns, queries or questions that you may have about haemophilia.

It's important to discuss your haemophilia care goals with your doctor. Understanding how to improve your protection from bleeds and engage in more meaningful conversations with your doctor will help you make your voice heard.

Preparing for your appointment

Closeup of a person’s hands while they sit on a sofa speaking to a doctor, who is holding a flipchart

Managing your care

Turning your thoughts into questions for your doctor

If you have trouble sharing what's on your mind about haemophilia, take a look at the following suggestions on how to start a conversation with your doctor.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.

Finding community support & tools library

 Making the most of every haemophilia appointment

Your voice matters in your haemophilia care, even if it feels challenging. Advocating for yourself is a key part of navigating this process, so it’s important to be aware of how to engage in your care and make your voice heard - before, during and after.

Finding community support & tools library

Discover your liberation goals

What does liberation mean for you? What are the things you want to do or keep doing? Complete the Liberation Map quiz to reflect on aspects of your wellbeing that you aspire to improve so you can discuss them with your doctor and get the support you need to pursue your goals.