Intro - living with haemophilia

Living with haemophilia  

Haemophilia affects everyone differently. Whether you’re a person living with haemophilia, a carer, partner or a parent of someone with haemophilia, you will face different challenges that will evolve over a lifetime. 

Figuring out boundaries, fitting in, learning to care for yourself, finding balance and making compromises are just some of the common learning curves that come with a life – or a loved one – with haemophilia. Liberate Life is about creating a reality where you can participate in sports any day you like – not just on treatment days – and take part in the same activities as your friends at school without fear. It’s about challenging convention and understanding what is indeed possible to do at your point in life. It’s about discovering these opportunities and making the most of them.

Ultimately, Liberate Life is about challenging the status quo and reaching for what is now very much possible and achievable: living your life to the absolute fullest. 

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I'm the parent of a child living with haemophilia

I'm a young adult living with haemophilia

 

 

 

I'm a senior living with haemophilia

Living with haemophilia

Click here to continue reading about the many possibilities for a life beyond haemophilia.

As everyone faces different circumstances, treatment approaches need to vary to meet individual needs. That’s why it is important first of all to speak with your haemophilia treatment team as they understand your condition and your circumstances. The team is your best source of information and advice.

If you are not already a member, you can also consider getting in contact with your local patient organisation, which can provide support, advice and more information. The people there are dedicated to improving the lives of people with haemophilia, and can keep you up-to-date with the latest developments. They can also help you gain a better understanding of your rights.

Guidance from your haemophilia team and support from your patient organisation will help you plan for your own future.

 

 

NP-7858

Living with haemophilia  

Haemophilia affects everyone differently. Whether you’re a person living with haemophilia, a carer, partner or a parent of someone with haemophilia, you will face different challenges that will evolve over a lifetime. 

Figuring out boundaries, fitting in, learning to care for yourself, finding balance and making compromises are just some of the common learning curves that come with a life – or a loved one – with haemophilia. Liberate Life is about creating a reality where you can participate in sports any day you like – not just on treatment days – and take part in the same activities as your friends at school without fear. It’s about challenging convention and understanding what is indeed possible to do at your point in life. It’s about discovering these opportunities and making the most of them.

Ultimately, Liberate Life is about challenging the status quo and reaching for what is now very much possible and achievable: living your life to the absolute fullest. 

Responsive banner

I'm the parent of a child living with haemophilia

I'm a young adult living with haemophilia

 

 

 

I'm a senior living with haemophilia

Living with haemophilia

Click here to continue reading about the many possibilities for a life beyond haemophilia.

As everyone faces different circumstances, treatment approaches need to vary to meet individual needs. That’s why it is important first of all to speak with your haemophilia treatment team as they understand your condition and your circumstances. The team is your best source of information and advice.

If you are not already a member, you can also consider getting in contact with your local patient organisation, which can provide support, advice and more information. The people there are dedicated to improving the lives of people with haemophilia, and can keep you up-to-date with the latest developments. They can also help you gain a better understanding of your rights.

Guidance from your haemophilia team and support from your patient organisation will help you plan for your own future.

 

 

NP-7858