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Haemophilia and you

Living with haemophilia B

How to navigate life with haemophilia

Everyone has a unique lifestyle and personal goals, and haemophilia shouldn't hold you back. Watch the videos to learn more about how different people are managing their haemophilia. Can you draw on their diverse experiences to think about how you can manage your haemophilia and achieve your goals?

Click on the videos below to explore the stories of five individuals living live to the fullest with haemophilia B.

Manage your child's haemophilia

Noah has severe haemophilia B and is 4 years old. Noah’s mother, Susannah, is learning to manage her concerns about Noah’s haemophilia as they prepare for him to start school.

Stay active safely with haemophilia

James is 16 years old. He is working with his physiotherapist to understand how he can stay active safely whilst managing his severe haemophilia B.

Discussing about getting a piercing

Charlie has severe haemophilia B. He's 25 years old and is discussing with his doctor about getting a piercing.

Managing hemophilia as you age

Martin has severe haemophilia B. At 58 years old, he has just retired from his once-based job and is learning how to manage his haemophilia alongside his newly active lifestyle.

Ageing and pain joint

Arthur has severe haemophilia B. He's 74 years old and wants to be able to play with his grandchildren and have less pain in his joints. He is working together with Sarah, his physiotherapist, to help him.

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Adults

Renato from Slovenia

"And from the time that I am monitoring my factor levels, I live quite a liberated life."

Finding community support & tools library

Discover your liberation goals

What does liberation mean for you? What are the things you want to do or keep doing? Complete the Liberation Map quiz to reflect on aspects of your wellbeing that you aspire to improve so you can discuss them with your doctor and get the support you need to pursue your goals.

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Haemophilia and you

Haemophilia, severity and bleeds

Living with haemophilia may come with certain challenges such as the risk of bleeding and joint pain. Understanding your haemophilia is the first step towards managing the risks and living a life with fewer limitations.