Teenagers and haemophilia
Haemophilia and you

Teenagers and haemophilia

As young people move towards adulthood, it’s only natural for them to strive to be more independent. Adolescence and the transition to becoming a young adult can be a challenging time, especially for young people living with haemophilia.

This section of the website includes personal stories from young people living with haemophilia, as well as educational resources providing tips and strategies to help others on their journey.

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Gaining independence

 Man and young boy walking on a beach holding fishing rods
Haemophilia and you

Exploring independence with haemophilia

Hear from Anders at age 14, talking about growing up with severe haemophilia A and how it has impacted his hobby of dance.
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Closeup on back of child as he runs in the forest, with other children seen ahead of him
Haemophilia and you

Giving your child with haemophilia more independence

Listen to Meri share her story of raising a teenage boy with severe haemophilia A and allowing him to gain independence around his condition.
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Your resources

podcast
Finding community support & tools library

Living with haemophilia in young adulthood

In this episode of our Podcast, Jay and Rich discuss home life and mental health.
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podcast
Finding community support & tools library

Growing up with haemophilia

Paul and Axelle are the parents of a little boy with haemophilia A, and Rich was diagnosed with severe haemophilia A as a child.
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podcast
Finding community support & tools library

Work, study and personal goals

In this episode about living with haemophilia in young adulthood, Jay and Rich explore the challenges of work, studies and reaching your goals.
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Booklet for teenagers
Finding community support & tools library

Haemophilia toolkit for teenagers

As teenagers with haemophilia grow older and become more independent from the adults who have been managing their haemophilia for them, it is important for them to approach this transition with patience and with the support of those around them.
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NP-40106 created January 2025