Caregivers, children and haemophilia

There are many resources here to help you understand the types of support you can provide to your loved ones with haemophilia. Listening to their concerns, encouraging open communication, valuing their independence and offering practical help are some ways in which you can help.

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Partners

A woman and a man on a canoe in a lake, one sitting down and looking in the distance and the other standing up holding a paddle over their head

Haemophilia and you

Joint health: supporting your partner with haemophilia

As the partner of someone living with haemophilia, you may be aware that they can experience haemophilia-related bleeds. This may trigger some questions, such as why and how does this affect their joints? What do joint problems mean for us as a couple? How can I help?

Haemophilia and you

Mental health: supporting your partner with haemophilia

Many of us will experience some form of mental health challenge during our lifetime.(1,2) This is no different for people with haemophilia. There are ways to help take back control and protect your emotional wellbeing.

Children

Man and young boy walking on a beach holding fishing rods

Haemophilia and you

Exploring independence with haemophilia

Hear from Anders at age 14, talking about growing up with severe haemophilia A and how it has impacted his hobby of dance.

Haemophilia and you

Supporting your child with haemophilia at school

If your child has haemophilia, people in close contact with them, such as additional caregivers and school staff, may have some questions and concerns about the best way to offer care and support.(1)

Closeup on back of child as he runs in the forest, with other children seen ahead of him

Haemophilia and you

Giving your child with haemophilia more independence

Listen to Meri share her story of raising a teenage boy with severe haemophilia A and allowing him to gain independence around his condition.

Smiling child playing in a playground climbing net

Haemophilia and you

Play and physical activity for children with haemophilia

Sports, exercise and physical activity can provide benefits for children with haemophilia. Find out how parents can help.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.