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Haemophilia and you

Adults and haemophilia

Living with haemophilia may mean being mindful when it comes to relationship and family planning. These aspects of life may be more complex for people with haemophilia, making it essential to have access to accurate information and support.

This section of the website provides information and real-life stories — everything from how to discuss haemophilia with others, working and studying with haemophilia, the intricacies of starting a new relationship, as well as what to consider if you are thinking about starting a family.

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Family and relationships

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Haemophilia and you

Talking with others about haemophilia

This article offers tips on discussing haemophilia with partners, friends and colleagues, emphasising the importance of timing, openness and a positive mindset to build trust and support.

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Haemophilia and you

Starting a family with haemophilia

Haemophilia is an inherited disorder, meaning that it is a genetic condition whereby parents pass the haemophilia gene on to their children. This guide is for carriers and people with haemophilia as they think about parenthood and starting a family.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.

Finding community support & tools library

Living with haemophilia in young adulthood

In this episode of our Podcast, Jay and Rich discuss home life and mental health.

Finding community support & tools library

Work, study and personal goals

In this episode about living with haemophilia in young adulthood, Jay and Rich explore the challenges of work, studies and reaching your goals.