Haemophilia and you
What is haemophilia? And how do people with haemophilia in every age but also the caregivers of children or teenagers with haemophilia experience this journey?
Also, what are the keywords used in the haemophilia world and what do they stand for? You can explore more in this section.
Also, what are the keywords used in the haemophilia world and what do they stand for? You can explore more in this section.
What is haemophilia?
There are two main types of haemophilia: haemophilia A and haemophilia B. Although there are similarities between the two types, there are also some differences. This section provides a general overview of haemophilia A and haemophilia B, explains what is like to live with one of those conditions, as well as information helping to dispel myths and misconceptions.
Caregivers, children and haemophilia
It can be hard to know how best to support a loved one with haemophilia, whether it’s your child, partner, or a friend. When someone you care about receives a haemophilia diagnosis, it can be overwhelming. Providing support can come in many forms — educating yourself about haemophilia and its impact is a great first step.
Teenagers and haemophilia
As young people move towards adulthood, it’s only natural for them to strive to be more independent. Adolescence and the transition to becoming a young adult can be a challenging time, especially for young people living with haemophilia.
Adults and haemophilia
Living with haemophilia may mean being mindful when it comes to relationship and family planning. These aspects of life may be more complex for people with haemophilia, making it essential to have access to accurate information and support.
Seniors and haemophilia
Taking care of your physical and mental health is essential for healthy ageing, especially as your body undergoes changes over time. For people living with haemophilia, it's important to be mindful of how to manage specific challenges. Maintaining an open line of communication with your haematologist is crucial.
Your resources
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NP-40106 created January 2025