Finding community support & tools library

Haemophilia toolkit for teenagers

As teenagers with haemophilia grow older and become more independent from the adults who have been managing their haemophilia for them, it is important for them to approach this transition with patience and with the support of those around them.

The teenage toolkit is a resource that helps guide and support teenagers through the process of managing their haemophilia independently. It’s structured to facilitate conversations between them and their healthcare provider, so they can address important aspects of their care.

This resource has been designed for parents, healthcare professionals and teenagers.

It was developed in association with Maj Friberg Birkedal, Specialist Nurse, Department of Paediatrics and Adolescent Medicine, Section 5002, Rigshospitalet, and Malin X. Axelsson, Paediatric Nurse, Coagulation Clinic Reception, Skåne University Hospital, Malmö, Sweden.

Download "The transition from childhood to adulthood"

Download "Guide to the conversation tool"

Download "Living with haemophilia"

Download "Action pad"

Download "All about your treatment"

Download "who should you tell about what? Why? And how?"

Download "What you need to know about haemophilia"

Download "travelling safely"

Download "What would you like to do? What do you enjoy doing?"

Download "An easy guide to ordering your medicine"

Download "Joints and joint damage require special care"

Download "Adjusting your treatment to your everyday life"