Lifestyle and independence with haemophilia

In this section of the website, you can explore the perspectives of those living with haemophilia as they share their own experiences when it comes to work, study and personal goals.

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Everyday life

Young man exercising outdoors while wearing headphones

Exploring your life ahead

Haemophilia hasn’t stopped me from getting 20 tattoos

In this video Scott McLean from Buckingham in the UK, talks about his experience of getting more than 20 tattoos while having severe haemophilia A.

Be independent

Pushbike leaning against railing overlooking a river, with the city skyline in the background

Exploring your life ahead

Gaining independence with haemophilia

In this video, Matty, living with severe haemophilia A, talks about how haemophilia has affected his involvement in sports.

Man and young boy walking on a beach holding fishing rods

Haemophilia and you

Exploring independence with haemophilia

Hear from Anders at age 14, talking about growing up with severe haemophilia A and how it has impacted his hobby of dance.

Closeup on back of child as he runs in the forest, with other children seen ahead of him

Haemophilia and you

Giving your child with haemophilia more independence

Listen to Meri share her story of raising a teenage boy with severe haemophilia A and allowing him to gain independence around his condition.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.

Finding community support & tools library

Work, study and personal goals

In this episode about living with haemophilia in young adulthood, Jay and Rich explore the challenges of work, studies and reaching your goals.

Finding community support & tools library

Haemophilia lifestyle and personal identity

In this episode, Jay and Rich share candid conversations about life with haemophilia.

Finding community support & tools library

Haemophilia or not, chase your dreams

Haemophilia doesn’t have to stop you from doing amazing things. Watch this short animation video to find out what you can do to try and realise your potential.