Joint and bleed protection
Everyday life with haemophilia

Joint & bleed protection

Managing haemophilia every day comes with its own set of challenges; however, people with haemophilia can live full lives with the right approach and treatment regime tailored to suit their individual needs.

When it comes to haemophilia joint and bleed protection, it’s important to understand that prevention is key. This section of the website includes information on how best to preserve joint function as well as various approaches and self-management strategies to handle bleeds for a better quality of life with haemophilia.

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Understanding silent bleeds

 Person wearing glasses, looking at the computer screen
Haemophilia and you

Haemophilia, severity and bleeds

Living with haemophilia may come with certain challenges such as the risk of bleeding and joint pain. Understanding your haemophilia is the first step towards managing the risks and living a life with fewer limitations.
Person climbing stairs
Everyday life with haemophilia

Understanding the impact of bleeds in haemophilia

In those living with haemophilia, bleeds, both clinical and silent bleeds, may present long-term risk for damage to joints, muscles and bones. Understanding the risks is important to help protect your overall health so that you can enjoy an active life with fewer limitations.

Understanding joint health

Little smiling boy is spending summer vacation with his grandfather by the sea
Haemophilia and you

Ageing and living well with haemophilia

Ageing is a natural process that can feel daunting - but it's encouraging to know many adults with haemophilia lead full and active lives. (1)
video of two athletes on bikes
Managing your care

Meet a physiotherapist

David Stephenson is a physiotherapist who works at a number of haemophilia centres in the UK. Here, he discusses the role of a physiotherapist and how they can help someone achieve their goals.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.
Breaking cycle of pain
Finding community support & tools library

Breaking out of the haemophilia pain cycle

To prevent or stop progression to joint damage, it is important to intervene early to stop joint bleeds and break out of the cycle of pain.
Breaking cycle of pain
Finding community support & tools library

Breaking out of the haemophilia pain cycle

To prevent or stop progression to joint damage, it is important to intervene early to stop joint bleeds and break out of the cycle of pain.
flyer to protect partner's joint health
Finding community support & tools library

Supporting your partner's joint health

Quick tips on helping your partner maintain and improve their joint health
infographic about pain in haemophilia
Finding community support & tools library

Infographic: Pain in haemophilia

Pain is the body’s way of saying something isn’t quite right – a warning sign that damage is occurring or about to happen.
Many people with haemophilia have their own personal experience of pain. However, it should not be considered the ‘norm’.
Pain can be managed and prevented.
Two friends in a boat on a lake
Finding community support & tools library

Strong joints, more freedom

Protecting your joints now so you can continue to do what you love in the future is crucial for people with haemophilia. This short animation explains what joint bleeds are, and why joints need protecting.
young child playing with his bike in a park
Finding community support & tools library

What is joint disease in people with haemophilia?

A simple bike analogy explains what joint bleeds are, and how they can lead to joint disease in people with haemophilia.

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NP-40108 created January 2025