Group of people holding hands upwards

Tools library and support

Part of living with haemophilia is understanding how best to manage your condition to fit in with your lifestyle. Having access to haemophilia information, guidance, tools and support can help you do just that.

Printable tools

Travel with confidence 1
Tools library and support

Travel with confidence infographic

Being well-prepared and feeling confident in managing your haemophilia may give you the freedom and peace of mind to travel and explore the world.
Read more
Move with confidence
Tools library and support

Move with Confidence infographic

Starting a new physical activity can feel challenging if you are unsure how to begin. By focusing on what you can do and with appropriate support, exercise can be a positive experience.
Read more
Confidence Factor Infographic
Tools library and support

Living with haemophilia A with confidence

Confidence involves feeling certain in your abilities. For people with haemophilia understanding, monitoring and managing their haemophilia with their care team is an important step towards confidence.
Read more
Synovitis
Tools library and support

How to protect your joints from synovitis (inflammation)

The synovial membrane surrounds the joints and contains synovial fluid that acts to lubricate the joint, helping with movement. It is important to detect synovitis (inflammation of the synovial membrane) before it leaves negative long-lasting effects.
Read more
my voice, my care
Tools library and support

A guide to prepare your appointment

Looking to get more out of your appointments with your haemophilia care team? Take the opportunity to go beyond routine check-ups and get more involved in making decisions around your health that can help you reach your goals.
Read more
Pharmacokinetics
Tools library and support

Understanding protection in haemophilia

Understanding the behaviour of the factor inside the body can potentially help to better manage the effect of haemophilia on your life!
Read more
Breaking cycle of pain
Tools library and support

Breaking out of the haemophilia pain cycle

To prevent or stop progression to joint damage, it is important to intervene early to stop joint bleeds and break out of the cycle of pain.
Read more
booklet : what is haemophilia B
Tools library and support

Booklet: Living with Haemophilia B

Download this booklet to learn more about haemophilia B and read about stories and personal goals of people with haemophilia B
Read more
flyer about partner mental health
Tools library and support

Supporting your partner’s mental health

Tips on helping your partner through emotional challenges
Read more
flyer to protect partner's joint health
Tools library and support

Supporting your partner's joint health

Quick tips on helping your partner maintain and improve their joint health
Read more
infographic about pain in haemophilia
Tools library and support

Infographic: Pain in haemophilia

Pain is the body’s way of saying something isn’t quite right – a warning sign that damage is occurring or about to happen.
Many people with haemophilia have their own personal experience of pain. However, it should not be considered the ‘norm’.
Pain can be managed and prevented.
Read more
Booklet about haemophilia
Tools library and support

 Making the most of every haemophilia appointment

Your voice matters in your haemophilia care, even if it feels challenging. Advocating for yourself is a key part of navigating this process, so it’s important to be aware of how to engage in your care and make your voice heard - before, during and after.
Read more
booklet on haemophilia caregiver

Your voice, their "care" downloadable guide

Caring for someone with haemophilia can be a complex journey, but with the right knowledge and support, you can make a significant impact. Read on for insights and advice to help you navigate the challenges and ensure your loved ones receive the best care possible.
Read more
infographic about haemophilia treatment

Finding the right haemophilia treatment for you

It’s important to understand what protection could mean for you and how to discuss this with your haemophilia care team.
Read more
Two men are running outside in the nature
Tools library and support

Get active and feel great with haemophilia

Watch as Tim and Jon, who both have haemophilia, embark on a journey to fitness. This fun video covers building up gently, setting realistic milestones, and watching for the early signs of joint bleeds.
Read more
Two friends in a boat on a lake
Tools library and support

Strong joints, more freedom

Protecting your joints now so you can continue to do what you love in the future is crucial for people with haemophilia. This short animation explains what joint bleeds are, and why joints need protecting.
Read more
young child playing with his bike in a park
Tools library and support

What is joint disease in people with haemophilia?

A simple bike analogy explains what joint bleeds are, and how they can lead to joint disease in people with haemophilia.
Read more
Teacher guide sheet
Tools library and support

Supporting children with haemophilia: a teacher’s guide

This guide covers what haemophilia is and guidance for teacher´s on how to deal with major and minor bleeds in children with haemophilia.
Read more
Arrival of a bike race
Tools library and support

Haemophilia or not, chase your dreams

Haemophilia doesn’t have to stop you from doing amazing things. Watch this short animation video to find out what you can do to try and realise your potential.
Read more
young sportive boy who had a knee injury
Tools library and support

Understanding normalised haemostasis

Understanding factor levels is key to managing haemophilia. Watch the video below to understand how to reduce your risk of bleed and joint damage by keeping your blood factor levels high.
Read more
Two boys playing with two balls in a park
Tools library and support

You, your friends and haemophilia

Explaining haemophilia to friends can feel daunting, but it doesn’t have to be. Sometimes learning how to give a simple explanation can make all the difference.
Read more
Liberation map graphic

Create a ‘Liberation Map’ for your haemophilia care

Discover what liberation means to you — in just 3 minutes. Answer a few simple questions and download a personalised plan and guide to support you in the next consultation with your haemophilia care team — no sign-up required.
Read more
Booklet for teenagers

Haemophilia toolkit for teenagers

As teenagers with haemophilia grow older and become more independent from the adults who have been managing their haemophilia for them, it is important for them to approach this transition with patience and with the support of those around them.
Read more
Child book about haemophilia
Tools library and support

‘Hugo with an H’ haemophilia picture story

Hugo with an H is a picture story for children about the feelings, fears and dreams of a boy with haemophilia. It’s a great way to learn everything about haemophilia, encourage teamwork, empathy and share values.
Read more

©2025 Swedish Orphan Biovitrum AB (publ) – All rights reserved
NP-40110 created January 2025