TV team interview

Real-life stories

People living with haemophilia have always interesting stories to share about their unique experiences with the condition.

This page is dedicated to all those that have shared their stories with us with the aim to inspire others in their haemophilia journey.

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Patient stories

Mont Blanc

‘Mountains We Carry; Mountains We Climb’ - the full documentary

"A goal for all people living with haemophilia is not to try to climb Mont Blanc, but to get out of the chair and do some physical activity."
man riding a bicycle

Renato from Slovenia

"And from the time that I am monitoring my factor levels, I live quite a liberated life."
woman standing up rehearsing in empty room with man seated watching

Paola from Italy

"I have become stronger, braver, and I have never stopped fighting to reach my goals."
two people running on path in the woods

Arni from Germany

"I play the piano, I play sports. I simply don’t feel like someone with haemophilia."
Close-up of Anders

Anders from Finland

"After I graduate, I’d like to study dance or musical theatre in New York or London."
couple enjoying the sunshine wtih sunglasses on

Alex from Greece

"Knowing my factor levels increases my confidence, you know when you need to be more careful or less careful and do the things that you want."

Caregiver stories

mother and her child are drawing on the ground

Axelle from France

"There is always something positive to be taught to our children to help them and us live happily with and beyond haemophilia."

Healthcare professionals' advice

Physiotherapist Paul

Gaining confidence to engage in physical activity

"I think some of the fears about being physically active are historical messages from when people with haemophilia were little."
man sitting in chair talking to camera

Meet physiotherapist David

"My philosophy is that we need to teach people to move better, then they can move more. We need to encourage them to be more active."