Privacy policy
Privacy Policy
This Privacy Policy applies to this website and other websites owned by Sobi that directly link to this policy. Please read this Privacy Policy carefully and feel free to contact us if you have any questions.
This Privacy Policy explains what personal information may be collected and processed about you during your visit to a Sobi owned website to which this policy applies, and how we use that information. It includes a description of your data privacy rights.
Personal data
We may collect personally identifiable information, meaning any information relating to an identified or identifiable person, such as names, addresses, telephone numbers, email addresses, country of residence only when voluntarily provided by you when you register or otherwise voluntarily submit information to us. Some of this information may relate to your health, which is particularly sensitive.
Data controller
Swedish Orphan Biovitrum AB (publ) (“Sobi”), with registered offices at SE-112 76 Stockholm, Sweden, e-mail address privacy@sobi.com, is responsible for the processing of your personal information in scope of this notice as it decides why and how it is processed, thereby acting as the “data controller” of such personal information.
Legal basis for processing
The personal information you provide is used by Sobi for the purposes of our legitimate interest in order to maintain and improve our website and to respond to requests for information and services.
Some personal data provided by you will be processed by Sobi after receiving your consent to the processing. In such case we will provide you with additional information related to the specific case and ask you to provide consent prior processing of such personal data. If the consent concerns a child under the age of 16 (or such other lower age determined by the local laws where you live), consent must be given by an authorized person with parental responsibility for the child.
Data submitted by you
You may visit our website without registering or submitting any personal information. However, you may be submitting personal information to us through contact forms or through a registration page. If you register or submit personal information, for example in order to receive e-mail updates, we will collect personal information that you have provided, such as your name, address, telephone number, e-mail address etc. when it is voluntarily submitted to us. When you interact with Sobi, we may also collect and use personal information which you do not yourself disclose, such as computer or de vice serial numbers and IP addresses, as part of being able to provide services. It will be clearly indicated if and when we collect such information from you.
How we will use your personal data
By providing your personal information to us, you agree that, where it is permitted by local law, we may use the information:
i) to respond to your questions or requests for information and communicate with you about the website
ii) to provide you with information that you have requested
iii) to comply with local laws, for example reporting adverse event information
iv) to consider your application for employment
v) for our own administrative and quality assurance purposes
vi) by placing cookies on your device to understand how visitors engage with and navigate our website to customize and improve our website and offer our visitors a more personalized user experience by delivering content and functionality. For more information about how we use cookies for this purpose, what cookies are and how you may choose to remove cookies from your device, please read our Use of Cookies page
vii) for other purposes that may be detailed on the website or mobile application or otherwise agreed between Sobi and you
We use aggregate information, which does not identify individuals, to monitor customer traffic patterns to the website and particular pages, as well as site usage, in order to help us improve the design and layout of the content.
Direct marketing
We will not use your personal information for marketing activities unless you have provided explicit consent to receive marketing communications from us.
Disclosures
In the course of our activities and for the same purposes as those listed in this privacy notice, your personal information can be accessed by, or transferred to the following categories of recipients on a need to know basis to achieve such purposes:
• our personnel (including personnel, departments or consultants),
• our independent agents or brokers (if any),
• our other suppliers and services providers that provide services and products to us,
• our IT systems providers, cloud service providers, database providers and consultants,
• any third party to whom we assign or novate any of our rights or obligations, and
• our advisors and external lawyers in the context of the sale or transfer of any part of our business or its assets.
1. Sobi is responsible for any processing by such third parties and will ensure that such contractors have entered into written agreements allowing Sobi to comply with our obligations under this privacy notice and applicable laws. Your personal information will not be disclosed to any other third parties unless you have explicitly given your consent to such disclosure or if it is required by law.
Transfer of data outside the EEA
The personal information you provide may be accessible or transferred to our affiliates, vendors or suppliers in other countries, including countries outside the European Economic Area (“EEA”). The level of legal protection for personal data is not the same in all countries and may not provide the same level of protection as the data protection laws in the EEA or of the country in which you live. In case of such transfer, Sobi will take reasonable efforts and security measures in an effort to keep your information secure, and Sobi is responsible to ensure that that the transfer takes place by means of Standard Contractual Clauses or EU Model Clauses or another method in accordance with applicable law.. You may contact us at privacy@sobi.com if you have any questions about the methods we use to safeguard any personal information transferred outside the EEA.
Security of personal information
We take reasonable steps to protect your personal information from loss, misuse, unauthorized access, disclosure, alteration or destruction by using security precautions that provide for industry standard protection. However, no data transmission over the Internet can be guaranteed to be completely secure. As a result, to the extent permitted under applicable law, we make no warranty, express or implied, concerning the security or integrity of any personal information.
Retention and erasure of personal information
We will retain your information only for the period necessary to fulfil the purposes outlined in this Privacy Policy or the period to which you have consented, unless a longer retention period is required by law.
Information regarding your rights
Whenever we process your personal information, we take reasonable steps to keep your personal information accurate and up-to-date for the purposes for which it is collected. We will provide you with the ability to exercise the following rights under the conditions and within the limits set forth in the applicable law:
• the right to be informed about what personal information we have about you and how we process your it,
• the right to access your personal information processed by us and, if you believe that any information relating to you is incorrect, obsolete or incomplete, to request its correction or updating,
• the right to request the erasure of your personal information or the restriction thereof to specific categories of processing,
• the right to withdraw your consent at any time, without affecting the lawfulness of the processing before such withdrawal,
• the right to object, in whole or in part, to the processing of your personal information. With certain exceptions, this includes the right to object to direct marketing,
• the right to request a data portability, i.e., that the personal information you have provided to us be returned to you or transferred to the person of your choice, in a structured, commonly used and machine-readable format without hindrance from us and subject to your confidentiality obligations, and
• the right to object to automated decision-making including profiling resulting in a significant or legal effect, i.e., you can request a human intervention in any automated decision-making process related to processing of your data resulting in a significant or legal effect, and where such processing is not based on your consent, authorized by law or necessary for the performance of a contract.
If you have any questions, requests or complaints about how we process your personal information, please contact us by using this online webform .
If you have any comments or complaints regarding the way your personal data is being handled, you have the right to contact the supervisory authority in Sweden (Swedish: Datainspektionen, see this link) or in the country where you live, to lodge a complaint.
Links to other websites
This website contains links to a number of sites that we believe may offer useful information for our website visitors. This Privacy Policy and the obligations under it do not apply to such websites (unless the other website is owned by Sobi and directly links to this policy). We suggest contacting those websites directly for information on their privacy, security, data and collection policies. Sobi cannot be held liable for any actions by or content provided by such third-party websites.
Changes to this Privacy Policy
We may update this website Privacy Policy from time to time. In case of material changes to the Privacy Policy (meaning any changes that materially affect your rights), a temporary notice will be published on the website.