Managing your care

Talking to your doctor

Knowing how to get the most out of interactions with your healthcare team can help you achieve what you want from your haemophilia care. Your doctor is likely to have questions for you, but your appointment is also an opportunity to discuss your wants and needs. Voice any concerns, queries or questions that you may have about haemophilia.

It's important to discuss your haemophilia care goals with your doctor. Understanding how to improve your protection from bleeds and engage in more meaningful conversations with your doctor will help you make your voice heard.

Preparing for your appointment

Closeup of a person’s hands while they sit on a sofa speaking to a doctor, who is holding a flipchart

Managing your care

Turning your thoughts into questions for your doctor

If you have trouble sharing what's on your mind about haemophilia, take a look at the following suggestions on how to start a conversation with your doctor.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.

A guide to prepare your appointment

Looking to get more out of your appointments with your haemophilia care team? Take the opportunity to go beyond routine check-ups and get more involved in making decisions around your health that can help you reach your goals.

 Making the most of every haemophilia appointment

Your voice matters in your haemophilia care, even if it feels challenging. Advocating for yourself is a key part of navigating this process, so it’s important to be aware of how to engage in your care and make your voice heard - before, during and after.

Create a ‘Liberation Map’ for your haemophilia care

Discover what liberation means to you — in just 3 minutes. Answer a few simple questions and download a personalised plan and guide to support you in the next consultation with your haemophilia care team — no sign-up required.