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Haemophilia and you

What is haemophilia?

There are two main types of haemophilia: haemophilia A and haemophilia B. Although there are similarities between the two types, there are also some differences. This section provides a general overview of haemophilia A and haemophilia B, explains what is like to live with one of those conditions, as well as information helping to dispel myths and misconceptions.

You can also expand your knowledge and understanding of some of the common medical terms associated with haemophilia and hear from patients about their experiences and how they work with their haemophilia care teams to help them reach their goals. 

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Haemophilia A

 A family of two adults and two young children walking in a forest or meadow
Haemophilia and you

What is haemophilia A?

Understanding haemophilia A and the impact it can have on your everyday life can help you manage your condition with confidence. Reducing the chance of bleeds and joint pain can help limit the impact haemophilia may have on your quality of life.
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Man looking at his phone smiling while sitting on outdoor steps.
Managing your care

Take control of your haemophilia

James Gorman shares his experience at 30 years of age living with severe haemophilia A. Here he writes on how people who live with haemophilia bring unique knowledge that should shape the care they receive.*
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A woman and a man on a canoe in a lake, one sitting down and looking in the distance and the other standing up holding a paddle over their head
Haemophilia and you

Joint health: supporting your partner with haemophilia

As the partner of someone living with haemophilia, you may be aware that they can experience haemophilia-related bleeds. This may trigger some questions, such as why and how does this affect their joints? What do joint problems mean for us as a couple? How can I help?
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Haemophilia B

A woman and a man on a canoe in a lake, one sitting down and looking in the distance and the other standing up holding a paddle over their head
Haemophilia and you

Joint health: supporting your partner with haemophilia

As the partner of someone living with haemophilia, you may be aware that they can experience haemophilia-related bleeds. This may trigger some questions, such as why and how does this affect their joints? What do joint problems mean for us as a couple? How can I help?
Read more
Closeup of a doctor’s hand holding a pen while they are gesturing and speaking to a patient
Haemophilia and you

What is haemophilia B?

Do you know what causes haemophilia B and what determines the severity of the disease?
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 Closeup of a young woman laughing while playing with a toddler in a living room
Haemophilia and you

Living with haemophilia B

Everyone has a unique lifestyle and personal goals, and haemophilia shouldn't hold you back. Watch the videos to learn more about how different people are managing their haemophilia. Can you draw on their diverse experiences to think about how you can manage your haemophilia and achieve your goals?

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Your questions answered

 Person wearing glasses, looking at the computer screen
Haemophilia and you

Haemophilia, severity and bleeds

Living with haemophilia may come with certain challenges such as the risk of bleeding and joint pain. Understanding your haemophilia is the first step towards managing the risks and living a life with fewer limitations.
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Young man exercising outdoors while wearing headphones
Exploring your life ahead

Haemophilia hasn’t stopped me from getting 20 tattoos

In this video Scott McLean from Buckingham in the UK, talks about his experience of getting more than 20 tattoos while having severe haemophilia A.
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 Young boy under water wearing a snorkelling mask
Haemophilia and you

Deciphering haemophilia

As a rare medical condition, haemophilia comes with its own vocabulary; this can often feel like the clinical team is speaking a completely different language. The words they use can be confusing and are often very different from how people with haemophilia may describe living with their condition.
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Man standing in front of camping tent outdoors speaking and gesticulating
Haemophilia and you

I had no family history of haemophilia

Rich was diagnosed with haemophilia as a child when he first started developing unusual bruises. His family, GPs and health visitors were concerned, and after a seemingly normal childhood injury didn't get better, he was given a blood test and diagnosed.
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Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advice tailored to the needs of haemophilia patients.
Pharmacokinetics

Understanding protection in haemophilia

Understanding the behaviour of the factor inside the body can potentially help to better manage the effect of haemophilia on your life!
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booklet : what is haemophilia B

Booklet: Living with Haemophilia B

Download this booklet to learn more about haemophilia B and read about stories and personal goals of people with haemophilia B
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Child book about haemophilia

‘Hugo with an H’ haemophilia picture story

Hugo with an H is a picture story for children about the feelings, fears and dreams of a boy with haemophilia. It’s a great way to learn everything about haemophilia, encourage teamwork, empathy and share values.
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NP-40106 created January 2025