Haemophilia Lifestyle & Independence: Personal Experiences

In this section of the website, you can explore the perspectives of those living with haemophilia as they share their own experiences when it comes to work, study and personal goals.

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Everyday life

Exploring your life ahead

Move with Confidence

When haemophilia is properly understood, monitored and managed, it doesn’t have to limit life.
It opens the door to an physically active, fulfilling and adventurous life.

Young man exercising outdoors while wearing headphones

Exploring your life ahead

Haemophilia hasn’t stopped me from getting 20 tattoos

In this video Scott McLean from Buckingham in the UK, talks about his experience of getting more than 20 tattoos while having severe haemophilia A.

Be independent

Exploring your life ahead

Move with Confidence

When haemophilia is properly understood, monitored and managed, it doesn’t have to limit life.
It opens the door to an physically active, fulfilling and adventurous life.

Exploring your life ahead

Move with Confidence

When haemophilia is properly understood, monitored and managed, it doesn’t have to limit life.
It opens the door to an physically active, fulfilling and adventurous life.

Pushbike leaning against railing overlooking a river, with the city skyline in the background

Exploring your life ahead

Gaining independence with haemophilia

In this video, Matty, living with severe haemophilia A, talks about how haemophilia has affected his involvement in sports.

Closeup on back of child as he runs in the forest, with other children seen ahead of him

Haemophilia and you

Giving your child with haemophilia more independence

Listen to Meri share her story of raising a teenage boy with severe haemophilia A and allowing him to gain independence around his condition.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.

Tools library and support

Move with Confidence infographic

Starting a new physical activity can feel challenging if you are unsure how to begin. By focusing on what you can do and with appropriate support, exercise can be a positive experience.

Tools library and support

Move with Confidence infographic

Starting a new physical activity can feel challenging if you are unsure how to begin. By focusing on what you can do and with appropriate support, exercise can be a positive experience.

Tools library and support

Living with haemophilia A with confidence

Confidence involves feeling certain in your abilities. For people with haemophilia understanding, monitoring and managing their haemophilia with their care team is an important step towards confidence.