Exploring your life ahead

Let your child gain independence with confidence

Are you confident about your role as a parent to a child with haemophilia?

The confidence to give your child independence and gradually let go of control is developed over time, as your child gains the skills to manage haemophilia independently.

"We need at some point to let them do their own things. We cannot let them constantly under our control."

Learn more from others in the community about their personal journeys in letting go and expanding the boundaries for the child.

‘Learning to let go: Building confidence towards your child’s haemophilia journey’ tells the story of Finn, Mario and their parents.

Finn and Mario are teenagers who are growing in independence and beginning to manage their haemophilia themselves. Their parents support them on this journey, while also naturally finding it difficult to let go.

Watch the film for inspiration, and speak with your care team for guidance as you support your child in taking the next steps towards independence.

Explore guidance and tips for letting go

Parents/caregivers of children with haemophilia may experience anxiety around their child's condition not being understood when leaving them in the care of others or concerns that their child is not fully prepared to start managing their own condition. But confidence grows with the understanding and reassurance that your child is protected.

Explore guidance and tips for more confidence in your child’s haemophilia journey. Download the infographic below

Download the guidance about letting your child go

Additional tips from a paediatric haemophilia nurse

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July, 2026