Exploring your life ahead

The Confidence Factor

Living with haemophilia can bring moments of uncertainty – whether it’s due to concerns about protection, pain, or other challenges in daily life.

Taking an active role in understanding, monitoring and managing your haemophilia, can help you to remove uncertainty and build confidence - especially with the help of your care team.

As someone with haemophilia, trying something new, such as a new sport, or embarking on a trip, can feel intense. As a parent supporting a child with haemophilia, giving your kids more independence with their haemophilia management, can also be daunting. But with the right steps and support from your care team, you can move forward and "live with confidence" with haemophilia.

Explore our series of inspiring video stories and infographics that show it’s possible to live life with confidence, along with practical tips to help you towards achieving it.

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Building your confidence

Exploring your life ahead

Let your child gain independence with confidence

The confidence to give your child independence and gradually let go of control is developed over time, as your child gains the skills to manage haemophilia independently.

Exploring your life ahead

Travel with confidence

Being well-prepared and feeling confident in managing your haemophilia may give you the freedom
and peace of mind to travel and explore the world.

Exploring your life ahead

Move with Confidence

When haemophilia is properly understood, monitored and managed, it doesn’t have to limit life.
It opens the door to an physically active, fulfilling and adventurous life.

Your resources

Living with haemophilia presents unique challenges, but with the right tools and knowledge, everyday life can be managed with confidence. In this section, you'll find a variety of resources and practical advices tailored to the needs of haemophilia patients.

Tools library and support

Guidance and tips for letting go with confidence

Parents and caregivers of children with haemophilia may experience anxiety around the child's condition not being understood when leaving them in the care of others or concerns that the child is not fully prepared to start managing the condition. But confidence grows with the understanding and reassurance that the child is protected.

Healthcare Professionals

Let your child gain independence with confidence

"Confidence evolves as the child ages when they´re being properly supported."

Adults

Let go with confidence

"We need at some point to let them do their own things. We cannot let them constantly under our control."

Adults

Interview with Alex Dowsett

"During a race, I can’t think about being a person with haemophilia — I have to focus completely on the ride."

Adults

Travel with Confidence

"You have to do all things in life so when you are old, you don´t regret anything."

Healthcare Professionals

Gaining confidence to travel

"Choose your destination, plan your trip, pack your medication, get the advice from your haemophilia center, and enjoy your holidays, because you can."

Tools library and support

Travel with confidence infographic

Being well-prepared and feeling confident in managing your haemophilia may give you the freedom and peace of mind to travel and explore the world.

Healthcare Professionals

Gaining confidence to engage in physical activity

"I think some of the fears about being physically active are historical messages from when people with haemophilia were little."

Adults

Move with Confidence

"I think that everyone can take part in something that can improve their body and themselves too."

Tools library and support

Move with Confidence infographic

Starting a new physical activity can feel challenging if you are unsure how to begin. By focusing on what you can do and with appropriate support, exercise can be a positive experience.

Tools library and support

Living with haemophilia A with confidence

Confidence involves feeling certain in your abilities. For people with haemophilia understanding, monitoring and managing their haemophilia with their care team is an important step towards confidence.