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Haemophilia and you

Growing older and living well with haemophilia

Living life to the fullest with haemophilia as you grow older

Ageing is a natural part of life, and although it can seem overwhelming at times, it’s reassuring to know that many adults living with haemophilia can enjoy fulfilling and active lives.

However, some adults, particularly those who didn't have access to preventive treatments from a young age, may face extra challenges. 2 

When it comes to ageing, there is a natural increase in a concept termed ‘fragility’. This refers to a decrease in resilience, a natural change that can be a particular concern for those with haemophilia. 1 

Repeated joint bleeds (haemarthroses) can lead to haemophilic arthropathy, which causes joint stiffness, deformities, and even limited mobility. 3 

change that can be a particular concern for those with haemophilia.
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Focusing on what you are able to do

Even if you're experiencing joint issues, there are ways to manage your condition and maintain and improve your quality of life.  Here are some things to keep in mind: 

 

  • Talk to your haematologist: Open communication with your haematologist is crucial. They can help you manage pain, adjust your treatment plan, and provide guidance on maintaining mobility 1 

 

  • Physiotherapy is key: Physiotherapy can help improve joint function, reduce pain, and increase flexibility. Work with a physiotherapist who has experience with haemophilia to develop a personalised exercise programme 1 

 

  • Manage pain effectively: Don't hesitate to discuss pain management options with your healthcare team.  There are various strategies, including medication and alternative therapies, that can help 1 

 

  • Stay active (within your limits): Even gentle exercise can help maintain or improve joint health and improve overall well-being. Choose activities that are comfortable for you and avoid putting excessive strain on your joints 1 

 

  • Seek support for your wellbeing: Living with haemophilia can be challenging, both physically and emotionally. Connect with support groups or online communities to share experiences and learn from others 1
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Remember, you’re not alone

Ageing and living well with haemophilia presents unique challenges, but it's important to focus on what you can do to maintain your health and well-being.  Your healthcare team is there to support you every step of the way.  

Don't hesitate to reach out for help, and remember that you can still live a fulfilling life.

  1. The Haemophilia Society. Ageing with a bleeding disorder: Managing trips, falls and mobility. Available at: https://haemophilia.org.uk/wp-content/uploads/2024/11/Managing-trips-falls-mobility_-FINAL-for-printing.pdf . Accessed February 2025.
  2. Irish Haemophilia Society. Joint Isuses in Adults With Haemophilia. Available at: https://haemophilia.ie/living-with-bleeding-disorders/adults-with-haemophilia/joints/. Accessed February 2025.
  3. Cuesta-Barriuso, R., Donoso-Úbeda, E., Meroño-Gallut, J., Ucero-Lozano, R., & Pérez-Llanes, R. J Blood Med 2022;13, 589–601

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