Kayaks on lake

Welcome to Liberate Life

Living Life Beyond Haemophilia
is our vision, based on our determination to transform
lives for people with rare diseases.

Explore haemophilia support resources and information that may help you to identify personal goals, limit the impact of the condition, and get the most out
of care and treatment.

Real-life stories

People living with haemophilia have always interesting stories to share about their unique experiences with the condition.

This page is dedicated to all those that have shared their stories with us with the aim to inspire others in their haemophilia journey.
Read more
confidence 3
Exploring your life ahead

Move with Confidence

When haemophilia is properly understood, monitored and managed, it doesn’t have to limit life.
It opens the door to an physically active, fulfilling and adventurous life.
Read more
Physiotherapist Paul

Gaining confidence to engage in physical activity

"I think some of the fears about being physically active are historical messages from when people with haemophilia were little."
Mont Blanc

‘Mountains We Carry; Mountains We Climb’ - the full documentary

"A goal for all people living with haemophilia is not to try to climb Mont Blanc, but to get out of the chair and do some physical activity."
man riding a bicycle

Renato from Slovenia

"And from the time that I am monitoring my factor levels, I live quite a liberated life."
mother and her child are drawing on the ground

Axelle from France

"There is always something positive to be taught to our children to help them and us live happily with and beyond haemophilia."
Close-up of Anders

Anders from Finland

"After I graduate, I’d like to study dance or musical theatre in New York or London."
woman standing up rehearsing in empty room with man seated watching

Paola from Italy

"I have become stronger, braver, and I have never stopped fighting to reach my goals."
couple enjoying the sunshine wtih sunglasses on

Alex from Greece

"Knowing my factor levels increases my confidence, you know when you need to be more careful or less careful and do the things that you want."
man sitting in chair talking to camera

Meet physiotherapist David

"My philosophy is that we need to teach people to move better, then they can move more. We need to encourage them to be more active."
Confidence Factor Infographic
Tools library and support

Living with haemophilia A with confidence

Confidence involves feeling certain in your abilities. For people with haemophilia understanding, monitoring and managing their haemophilia with their care team is an important step towards confidence.
Read more
Move with confidence
Tools library and support

Move with Confidence infographic

Starting a new physical activity can feel challenging if you are unsure how to begin. By focusing on what you can do and with appropriate support, exercise can be a positive experience.
Read more
Synovitis
Tools library and support

How to protect your joints from synovitis (inflammation)

The synovial membrane surrounds the joints and contains synovial fluid that acts to lubricate the joint, helping with movement. It is important to detect synovitis (inflammation of the synovial membrane) before it leaves negative long-lasting effects.
Read more
Breaking cycle of pain
Tools library and support

Breaking out of the haemophilia pain cycle

To prevent or stop progression to joint damage, it is important to intervene early to stop joint bleeds and break out of the cycle of pain.
Read more
my voice, my care
Tools library and support

A guide to prepare your appointment

Looking to get more out of your appointments with your haemophilia care team? Take the opportunity to go beyond routine check-ups and get more involved in making decisions around your health that can help you reach your goals.
Read more
booklet : what is haemophilia B
Tools library and support

Booklet: Living with Haemophilia B

Download this booklet to learn more about haemophilia B and read about stories and personal goals of people with haemophilia B
Read more
infographic about haemophilia treatment

Finding the right haemophilia treatment for you

It’s important to understand what protection could mean for you and how to discuss this with your haemophilia care team.
Read more

Your haemophilia journey

This site aims to provide you with support and information that may help to identify personal goals, limit the impact of the condition, and get the most out of care and treatment.
Happy man and child riding bike

Haemophilia & you
In this section you will find general information about haemophilia, as well as useful resources for caregivers, children, teenagers, adults and seniors living with haemophilia.
Read more
Happy family running in sunshine

Everyday life with haemophilia
Living with haemophilia may affect your joint health and can lead to pain impacting your wellbeing and activity levels.
Read more
People holding hands raised against roof

Finding community support & tools library
Find all the contact details for your closest haemophilia organisation and tools created for you.
Read more

Selected content for you

man riding a bicycle

Renato from Slovenia

"And from the time that I am monitoring my factor levels, I live quite a liberated life."
Liberation map graphic

Create a ‘Liberation Map’ for your haemophilia care

Discover what liberation means to you — in just 3 minutes. Answer a few simple questions and download a personalised plan and guide to support you in the next consultation with your haemophilia care team — no sign-up required.
Read more
Breaking cycle of pain
Tools library and support

Breaking out of the haemophilia pain cycle

To prevent or stop progression to joint damage, it is important to intervene early to stop joint bleeds and break out of the cycle of pain.
Read more